Hey Everybody!
When I was in the hospital 2.5 years ago, I could have never have imagined the journey I would be on for the following two and a half years. I could have never imagined all the labs, all the ultrasounds of various parts of my abdomen, CT's, and a bone marrow biopsy. Yet even after all that, still not have the answers I needed or a definitive diagnosis as to what is going on with my body. Then there are the questions I ask myself, such as "did I do anything to make things worse?", "could I have done anything differently?".
Life for the past two and a half years has been all about surviving one day to the next, one week to the next, one shift at work.
I know my story is not all that uncommon or different from so many others who are also struggling with chronic illnesses and just trying to survive life. There have been so many times I have wanted to give up, and so many times I have felt so alone.
Sometimes it feels good just to write.
Having talked to others who have lived with chronic illnesses, has helped me feel a little less alone in a world where my illness / disease/ disability / struggle is invisible to those who haven't experienced the pain, exhaustion and struggle just to function. While I don't wish for anyone to have to experience what I have had to endure, it would be nice for those who don't understand and don't care, to be forced to learn the compassion and empathy that we deserve to have. Those of us living with chronic illnesses didn't choose this, we aren't lazy or looking for hand outs. We want answers and to be treated like human beings.
No comments:
Post a Comment